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Joined 1 year ago
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Cake day: August 5th, 2023

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  • I didn’t want to say it if it wasn’t already on your radar, but I have PoTS and know a number of people with jejunostomy feeding tubes due to their gastroparesis. I even know a girl on parenteral nutrition. I don’t think I’ve ever met anyone with nausea as their main symptom though so I didn’t think of PoTS until you mentioned you’d researched it.

    I love the acknowledgment that it’s not your body - you sound like a loving, supportive partner 🙂 Sometimes the “answer” seems so simple when you’re not the patient but when you’re chronically ill, you’ve already lost so much control over your body… having to take a drug you don’t want to feels like a step too far. It’s hard to explain and I’m not doing a very good job!

    THC is not remotely in the same category of awfulness as a feeding tube so I’m glad she’ll probably try that first. And you don’t need to get high high to feel the anti-nausea/pro-appetite benefits - I use less than 0.25gm a day, maybe even half that and it does the trick just fine. Wishing your wife better soon!





  • I’m a really big reader and have had 4 or 5 kindles now. My latest is the oasis and it was a considerable payout for me but I absolutely love it. I rarely pay for books, but kindles have a send-to-kindle function so you can download books from anywhere in any of the main formats and just email it to your kindle.

    E-reader screens can seem really basic to the uninitiated but the paper white/oasis is just like reading from a book imo. Except you can read it in the dark too.


  • I feel you. This is the second winter we’ve only been able to heat one room to at least 18C, and that’s not warm enough for my disabled ass. My electric throw blanket is on 24/7 though and is incredibly efficient - it costs less than 25p a day. I would highly recommend one if you can manage the upfront cost. Also wrist warmers are highly underrated imo - cheap, you can knit/crochet them yourself, your fingers are still free for touch screens and they seem to keep me warmer than just a hat alone. Wishing you more comfortable times ahead, friend.